Becoming a full-time carer at the tender age of 13 is not a typical path for most young people. Yet, for me, it became a defining aspect of my life's journey as I stepped into the role of caring for my grandmother and her chronic obstructive pulmonary disease (COPD). This journey has not only shaped my personal narrative but also ignited a passion for advocating for improved support systems for carers, especially young carers, within our healthcare infrastructure.

My grandmother's health decline marked the beginning of my caregiving journey. As her frequent hospital admissions became the norm, primarily due to life-threatening infections escalating into pneumonia, I found myself assuming the role of her primary caregiver. From providing 24-hour personal care to offering emotional support, my responsibilities encompassed a myriad of tasks aimed at ensuring her well-being. Managing her COPD demanded meticulous attention, including maintaining a healthy body mass index and administering medication diligently.

However, amidst the duties lay the stark reality of navigating the healthcare system, which often felt daunting and inadequate. The lack of clear communication from healthcare professionals, particularly during the diagnosis of the COPD, left us grappling with uncertainties about the future. The absence of discussions about the seriousness of her condition and the limited time we had together added to our distress.

One of the most shocking realisations during this journey was the discovery of a 'do not resuscitate' order in my grandmother's medical records, a decision made without our knowledge or consent. This disregard for our family's wishes underscored the need for better communication and involvement of caregivers in the decision-making process.

Amidst these challenges emerged my interest in respiratory medicine and advocacy for patient-centred care. Drawing from my personal experiences and involvement with healthcare services, I became a vocal advocate for amplifying patient voices and improving care experiences. Collaborating with organisations like the North East London NHS Foundation Trust (NELFT), I strived to bridge the gap between patients and healthcare providers, advocating for inclusivity and empathy in care delivery.

Recognising the unique needs of young carers, I advocate for tailored interventions and support systems. Initiatives like the development of a carer's passport aim to empower carers in balancing their caregiving responsibilities with work commitments, fostering a supportive work environment conducive to their well-being.

As I reflect on my journey as a carer, I am driven by a fervent desire to effect meaningful change within our healthcare system. Through advocacy, collaboration, and elevating minority voices, I aspire to create a healthcare landscape that is inclusive, empathetic, and responsive to the needs of all individuals, especially those in caregiving roles.

In conclusion, it is my fervent hope that by sharing my story and advocating for change, I can contribute to a future where caregivers are valued, supported, and empowered to provide the best possible care for their loved ones.